Boston Disability Commission Tackles PCA Program Funding Concerns Amid Workforce Shortages
- Meeting Overview:
In a discussion at the recent Boston Disability Commission Advisory Board meeting, attention was given to the challenges facing the Personal Care Attendant (PCA) program, particularly regarding funding constraints and workforce shortages. The PCA program, essential for fostering independence among individuals with chronic disabilities, faces a projected financial burden on the Mass Health budget of nearly $2 billion amid anticipated Medicaid cuts. The workforce shortages, compounded by immigration status changes, further threaten the program’s sustainability and accessibility.
The PCA program was outlined by a presenter who described its self-directed model, enabling individuals with disabilities to hire and manage their own attendants. This approach reflects the principles of the independent living movement, emphasizing consumer control over personal routines and care. Eligibility for PCA services requires MassHealth coverage and a need for assistance with daily activities. However, ongoing negotiations and challenges highlight concerns for maintaining service quality and availability.
One focus of the meeting was the approval of a pay differential for PCAs handling complex care, particularly for wheelchair users, set to begin in January 2026. This differential, amounting to an additional $3.25 per hour, aims to incentivize PCAs for managing more challenging care scenarios. The intricate process of informing eligible consumers about this differential was discussed, with Mass Health tasked with sending eligibility notifications starting in December.
Regulatory changes impacting PCA hiring were another major discussion point. New regulations will halt the practice of immediate hiring with retroactive pay, requiring compliance with labor laws and the introduction of an electronic system, “Paperworker,” to streamline the hiring process. Despite these efforts, delays in service delivery are anticipated.
Public involvement in the PCA program’s challenges was encouraged, with board members urging disability advocates to engage with legislators to secure funding and policy support.
Another topic was the recent estate recovery ruling by Mass Health, which impacts PCA services. The ruling exempts individuals from liability for repayments to Mass Health after age 55, a significant victory for advocates.
The meeting also addressed upcoming municipal elections, stressing the importance of voter participation. The chair urged individuals with disabilities to vote early, emphasizing the impact of these elections on their lives. Early voting details and the significance of the elections were reiterated, with a call for widespread participation.
Transportation issues within Boston Public Schools were another focal point. The executive director of transportation reported on the transportation system serving 20,000 students, including over 6,000 with disabilities. On-time performance improvements were noted, though challenges with bus availability and staffing persist. Concerns about dangerous driving behaviors and the separation of transportation data for students with disabilities were discussed, highlighting the need for targeted solutions.
Architectural access developments included the introduction of the new Carter School, designed for students with complex medical needs. The school features accessible facilities such as a zero-step entrance swimming pool and therapeutic play structures.
The meeting concluded with discussions on various community events and public input, highlighting concerns about captioning accuracy during online meetings. The board explored potential improvements in transcription services, reflecting ongoing efforts to enhance communication and accessibility for all participants.
Michelle Wu
Disability Advisory Committee Officials:
Kristen McCosh, Carl Richardson, Jerry Boyd, Dusya Lyubovskaya, Zary Amirhoussini, Olivia Richard, Juan Ramirez-Tapia, Elizabeth Dean-Clower, G. Paul Caron, Wesley Ireland, Alice Fisher, Richard Glovsky, Charlie Kim, Paulette Spriggs Durrett, Patricia Mendez (Architectural Access Update)
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Meeting Type:
Disability Advisory Committee
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Committee:
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Meeting Date:
10/22/2025
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Recording Published:
10/23/2025
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Duration:
120 Minutes
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Notability Score:
Noteworthy
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State:
Massachusetts
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County:
Suffolk County
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Towns:
Boston
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